Last year, I read a great novel: Click
here: Amazon.com: You're Not You: A Novel: Michelle Wildgen: Books.
It's about a 20 year old girl who is a college student and who becomes an
attendant for a woman with ALS. The student narrates it,
has no experience, yet they develop an interesting friendship. One of the
reasons I liked it is the author doesn't sugar-coat the disability, and
explicitly describes the woman's ADLs. There's also a subplot involving
the woman wanting to divorce her husband.